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Thread: DH in a lot of pain any suggestions?

  1. #1

    Default DH in a lot of pain any suggestions?

    My DH has a kidney transplant, for the past 4/5 months had lots of pain in his tummy. We have had lots of tests and last thursday the gastro doc phoned and said it is peritoneal tb, he does not deal with that so referred him to the respiratiry dept. We have received the copy letter so I googled the respiratory consultant and emailed her, then found her secretary's number and rang this morning. She found the letter and said the consultant is on holiday for 2 weeks but she will get one of the others to look at it I should add, all these are in the same hospital, so why are they waiting for letters to each other?? Apparently the treatment will be 4 different types of antibiotics for 6-9 months, I bet if he was infectious instead of 'merely' in a lot of pain they would deal with him immediately.
    Perhaps I have got a bit impatient because he had salmonella a year ago, lasted about 6 weeks then arthritis in both ankles, more pain for 5 months and lots of doctors scratching their heads and now this so it has been a year with lots of pain and still no end in sight. He can't even take any painkillers except paracetamol
    Is there anything I can do to get them to HURRY UP??
    Last edited by melroccan; 6th November 2012 at 11:38.

  2. #2
    Join Date
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    So sorry to hear this - dont think I am much use but if his pain is worse just go toA & E - he will hopefully get his course of antibiotics sooner

  3. #3
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    Hi mel
    Poor hubby he is really suffering.
    I know with my hubby the first port of call is the renal unit. He was unwell a few years ago with something unrelated to the transplant, they had him sorted asap. I they won't help I would be calling an ambulance, they will have to sort it then.
    Let us know what happens.

  4. #4

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    I am waiting for a call back from our GP, if he can't suggest anything helpfull I will be off to A&E. I spoke to our transplant nurse on Friday, she said she would get the doctor to look into it but nothing more heard, and I can't get hold of them today.

  5. #5
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    When I had bother with gallbladder pain ( no one knew what the pain was as the gallbladder scan was clear - it had been misread )
    The only real attention I got was not the 3 trips to A&E during the evenings but the trip to A&E in an ambulance in the middle of the night.
    In my nearest hospital the doctors you see at night are GPs on a call system but the people taken by ambulance see the hospital doctors ( hope that makes sense)

  6. #6

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    Thanks for the replies, GP wasn't too helpfull, said I had already called the hospital so there wasn't much more she could do. I asked her why the letters when a quick phone call would have done since he had already been diagnosed and just needs the treatment. She said they can't be phoning people all the time, they'd never get anything done and it all needed setting out in a letter, treatment would be complicated, blah blah. Then we got a call from a lady on the Respiratory medicine dept. who specialises in tb and wants him to come in tomorrow and get started on some meds. She couldn't understand why the gastro doc had not just phoned through and she would have seen him last week.... Just finished banging my head against the wall. At least I finally got a result!

  7. #7
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    Quote Originally Posted by melroccan View Post
    Thanks for the replies, GP wasn't too helpfull, said I had already called the hospital so there wasn't much more she could do. I asked her why the letters when a quick phone call would have done since he had already been diagnosed and just needs the treatment. She said they can't be phoning people all the time, they'd never get anything done and it all needed setting out in a letter, treatment would be complicated, blah blah. Then we got a call from a lady on the Respiratory medicine dept. who specialises in tb and wants him to come in tomorrow and get started on some meds. She couldn't understand why the gastro doc had not just phoned through and she would have seen him last week.... Just finished banging my head against the wall. At least I finally got a result!
    Thank goodness for that The right doesn't know what the left is doing last resort would have been an ambulance.
    my dd has to have wrist op, referred in Feb or so we thought, GP hadn't sent letter!! second time that has happened the first time it was when my ds was 4 and very poorly with a stomach complaint. His notes went missing, found in the GP's car 3 months later
    Good luck for tomorrow x

  8. #8

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    Once again my DH is in pain with his stomach, finished his TB meds 3 weeks ago so there is some messing about going on with lots of blood tests to try and stabilise his meds but this tummy problem seems to have been triggered off by a bout of food poisoning.
    Thought we had found a helpful doc at last but he has lost interest and given him an appointment for NEXT TUESDAY.

  9. #9
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    Guess you are frustrated by what is going on but a forum specialising in Tesco Clubcard points is not the best place to seek medical advice.

  10. #10

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    Quote Originally Posted by Greenpen View Post
    Guess you are frustrated by what is going on but a forum specialising in Tesco Clubcard points is not the best place to seek medical advice.
    I guess that's why melroccan has posted in 'health and beauty' and not Tesco clubcard points.

    Sorry I don't have anything positive to suggest, only keep turning up at A&E if the pain is unbearable. I know when I had trigeminal neuralgia the pain was unbearable, and always worse in the middle of the night. After a couple of trips to A&E, it did eventually get sorted out.

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