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Thread: Anyone on GFCFSF diet?

  1. #1
    Join Date
    Oct 2006
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    340

    Default Anyone on GFCFSF diet?

    MY 4 year old DS has ASD and has had gastro-intestinal (GI) issues since he was very little. Biomed is not available on NHS and they turn a blind eye to an ASD and GI link although there is clear evidence that controlling the diet does have beneficial effects on ASD symptoms and even if it doesn't, the GI issues should still be addressed as an independent issue as they indicate intolerance(s) and could lead to ulcers, cancers, deficiencies etc in the long term.

    We will be seeing a biomed dietician in August, that's how long the waiting list is. I was wondering if anyone on here is on a Gluten Free Casein Free Soya Free (GFCFSF) Diet? Usually people follow a GFCF diet but DS hasn't taken well to soya milk either and hence that needs to be eliminated too. Supermarkets are full of GF, CF or even GFCF products but there are very few products that are soya free as well. Does anyone know of any good websites from personal use? There are quite a few sites but i thought perhaps I'd ask here first. It;'s a long journey ahead for us as ASD in itself is something big for us to handle and help him best. We are doing a behavior analysis program, speech therapy and occupation therapy and need to go down the biomed route too as he is suffering.

  2. #2
    Join Date
    Jan 2010
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    1,886

    Default

    I know of someone whose daughter didn't have ASD symtoms when tube fed so is particularly interested in the science involved around gut flora. She's probably a good place to start as she will be up to date with the latest research. I'll PM her Username and where to find her.

    Good luck, it's not going to be easy for you.

  3. #3

    Default

    That's basically a paleo diet. There is a ton of info out there. Start with Marks Daily Apple, RobbWolf.com, paleoparents.com, and you'll find so much.

  4. #4
    Join Date
    Sep 2006
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    1,239

    Default

    Please check the degree your biomed dietician has. I know of one nutritional therapist with a very dodgy degree that is validated from a university that no longer validates these degrees.

  5. #5

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    Hi,
    I am Gluten Free, Dairy Free and I sort of avoid Soya (but not 100% strict with that).
    Maybe try Alpro Almond milk. I prefer it to soya anyway!

    Tesco have a lot of their "Free from" food on "Buy 3 for price of 2 get cheapest free" until 20/5 so a good time to stock up on suitable products.

    Good luck,
    MM x

    http://www.tesco.com/groceries/Speci...moId=A30588565
    Please adopt a rescued dog or cat from your local animal shelter!

  6. #6
    Join Date
    Oct 2006
    Posts
    340

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    Quote Originally Posted by mutley muppet View Post
    Hi,
    I am Gluten Free, Dairy Free and I sort of avoid Soya (but not 100% strict with that).
    Maybe try Alpro Almond milk. I prefer it to soya anyway!

    Tesco have a lot of their "Free from" food on "Buy 3 for price of 2 get cheapest free" until 20/5 so a good time to stock up on suitable products.

    Good luck,
    MM x

    http://www.tesco.com/groceries/Speci...moId=A30588565
    Thanks everyone. The only major problem is a lot of these are GFCF but not many are soya free as well. Mutley muppet do you buy different toothpastes, soaps, shampoos and washing detergents too? The more I am reading the more I am realising how big a change this will be. Let me know if you go to any particular shops.

  7. #7

    Default

    Yes, you are right, Soya is used in a lot of these FreeFrom/Vegetarian products.

    So far as I know the Nakd bars are Soya Free (coupons available for these to make them 20p if you buy in 3's). They are just fruit & nuts with a natural flavouring. I've met the guys who run this company, I'm sure they will be happy to confirm for you if the ingredients are suitable for your DS.
    I find these bars handy to have as an emergency snack when I'm out & about, the choc/orange ones are my favourite but they are all nice.

    Yes, I do buy as much "natural" household & toiletries as I can. I use Ecover washing up liquid (on offer in Tesco at the moment), I use ASDA natural Fabric conditioner, and I have a stash of Simply Pure washing tabs (http://www.simplywashing.com/where-to-buy/).
    I use Dr bronner's liquid soap instead of regular shower gel & as a hand soap.
    I use Weleda toothpaste: http://www.weleda.co.uk/oral-care/ra...ml/invt/101002
    And I use organic, unrefined Shea Butter as a hand cream & moisturiser.

    A lot of these products are really expensive compared to items you might find in a supermarket, but I do find that most of them are pretty concentrated so last a long time. The Weleda toothpaste lasts ages, you only need a little bit! And the Dr Bronner liquid soap is a concentrate that you dilute with water so again it last a long time.

    I buy some stuff from my local health food store, some stuff in bulk from a local food coop, some stuff like the Shea Butter I buy from an Ebay seller.

    I keep a look out for offers and stock up when I can. I also cook most of my meals from scratch as it's easier & cheaper than trying to find processed food that is suitable.

    Having said that, there are some things that are GFCFSF like these Goodlife Frozen Glamorgan Sausages 300g:

    http://www.tesco.com/groceries/Produ.../?id=274055193

    (and they are on the 3 for 2 offer this week)

    Not very Healthy but this Bessant And Drurys Chocolate Dairy Free Dessert Ice cream in Tesco is also GFCFSF:

    http://www.tesco.com/groceries/Produ.../?id=274050169

    It's not as nice as the much cheaper Swedish Glace dairy free icecream, but Swedish Glace contains soya sadly.

    I would get preparing some foods at home yourself & batch freezing them, at least then you know exactly what's gone in too them & much cheaper too!
    Good luck hun & feel free to ask anything else.
    MM x

    p.s. There is an Allergy & Free From Show in London early June: http://www.allergyshow.co.uk/london/...-registration/
    You can get free tickets & it might be a useful place to visit & talk/sample products if you can get there? I've never been as I'm not that close to London but I would go if I was closer.

    p.p.s. The BBC Food Website has a great search function on it's website: http://www.bbc.co.uk/food/recipes
    If you click the "advanced search" option then tick Dairy Free + Gluten Free it'll bring up loads of recipes. Sadly no option for Soya Free, but I think there are lots on there without Soya. I also adapt some recipes and batch cook & freeze them like this one for falafels: http://www.bbc.co.uk/food/recipes/fa...rwithhou_72037 (I obviously don't serve them in bread rolls).
    Last edited by mutley muppet; 16th May 2013 at 00:13.
    Please adopt a rescued dog or cat from your local animal shelter!

  8. #8
    Join Date
    Oct 2006
    Posts
    340

    Default

    Quote Originally Posted by mutley muppet View Post
    Yes, you are right, Soya is used in a lot of these FreeFrom/Vegetarian products.

    So far as I know the Nakd bars are Soya Free (coupons available for these to make them 20p if you buy in 3's). They are just fruit & nuts with a natural flavouring. I've met the guys who run this company, I'm sure they will be happy to confirm for you if the ingredients are suitable for your DS.
    I find these bars handy to have as an emergency snack when I'm out & about, the choc/orange ones are my favourite but they are all nice.

    Yes, I do buy as much "natural" household & toiletries as I can. I use Ecover washing up liquid (on offer in Tesco at the moment), I use ASDA natural Fabric conditioner, and I have a stash of Simply Pure washing tabs (http://www.simplywashing.com/where-to-buy/).
    I use Dr bronner's liquid soap instead of regular shower gel & as a hand soap.
    I use Weleda toothpaste: http://www.weleda.co.uk/oral-care/ra...ml/invt/101002
    And I use organic, unrefined Shea Butter as a hand cream & moisturiser.

    A lot of these products are really expensive compared to items you might find in a supermarket, but I do find that most of them are pretty concentrated so last a long time. The Weleda toothpaste lasts ages, you only need a little bit! And the Dr Bronner liquid soap is a concentrate that you dilute with water so again it last a long time.

    I buy some stuff from my local health food store, some stuff in bulk from a local food coop, some stuff like the Shea Butter I buy from an Ebay seller.

    I keep a look out for offers and stock up when I can. I also cook most of my meals from scratch as it's easier & cheaper than trying to find processed food that is suitable.

    Having said that, there are some things that are GFCFSF like these Goodlife Frozen Glamorgan Sausages 300g:

    http://www.tesco.com/groceries/Produ.../?id=274055193

    (and they are on the 3 for 2 offer this week)

    Not very Healthy but this Bessant And Drurys Chocolate Dairy Free Dessert Ice cream in Tesco is also GFCFSF:

    http://www.tesco.com/groceries/Produ.../?id=274050169

    It's not as nice as the much cheaper Swedish Glace dairy free icecream, but Swedish Glace contains soya sadly.

    I would get preparing some foods at home yourself & batch freezing them, at least then you know exactly what's gone in too them & much cheaper too!
    Good luck hun & feel free to ask anything else.
    MM x

    p.s. There is an Allergy & Free From Show in London early June: http://www.allergyshow.co.uk/london/...-registration/
    You can get free tickets & it might be a useful place to visit & talk/sample products if you can get there? I've never been as I'm not that close to London but I would go if I was closer.

    p.p.s. The BBC Food Website has a great search function on it's website: http://www.bbc.co.uk/food/recipes
    If you click the "advanced search" option then tick Dairy Free + Gluten Free it'll bring up loads of recipes. Sadly no option for Soya Free, but I think there are lots on there without Soya. I also adapt some recipes and batch cook & freeze them like this one for falafels: http://www.bbc.co.uk/food/recipes/fa...rwithhou_72037 (I obviously don't serve them in bread rolls).
    What a helpful post. Thanks so much, have repped you. Will let you know how I get on. We will be seeing Dr Goyal at Sincere Health in Aug/Sept but have taken an appointment with his nutritionist in the meantime to make sense of DS's tests and deficiencies.

  9. #9

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    Quote Originally Posted by s879 View Post
    What a helpful post. Thanks so much, have repped you. Will let you know how I get on. We will be seeing Dr Goyal at Sincere Health in Aug/Sept but have taken an appointment with his nutritionist in the meantime to make sense of DS's tests and deficiencies.
    You're very welcome.

    By the way, I avoid certain food stuffs because of auto-immune problems (coeliacs disease, hashimoto's thyroiditis and autoimmune leukopenia). I don't suffer with any ASD type symptoms but interestingly I do notice that I feel very down if I do let my diet "slip". I am naturally a very optimistic & positive person, but any inclusion of gluten in my diet can make me feel very off colour.

    I hope you see some positive results in your DS and that your appointment with your chosen doctor goes well? Please do let us know how you get on?
    Best wishes,
    MM x
    Please adopt a rescued dog or cat from your local animal shelter!

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